Wills was on good form today but in pain again. He declared that it had been a good day for him but a bad day for his tummy. He was chatty and getting close to his self. His liver enzymes are now improved, a great relief to me and the team. However, his stoma has completely stopped working and we had to stop his feed. Once again, we were down at x-ray. William insisted on taking all his lovely balloons with him, much to the amusement of everyone we passed en route. The surgeon came to see us when we got back and asked me to put the tube that goes into his jejenum, the bowel just below the somach, onto fre drainage. Immediately, right before our eyes. 250 mls of bile poured out. William's stoma is very swollen and the surgeon thinks the end of the bowel may have been punctured in the routine stoma biopsy that happens twice a week. Wills is off feed for the time being and we will wait and see what happens over night. If the stoma is still not working he will have a CT scan and may have to go back into theatre. This is a dissapointing set back but that is all it is. His bowel did work and it will again! It is sad for him that he may have to face another painful operation though.
You never know what life will throw at you! In 2004, my stable life with two healthy daughters was rocked to the core when I gave birth to William, a little boy with complex needs. Life was never the same again. We've come through living in hospitals, a small bowel transplant and coming to terms with Asperger's Syndrome and I'm finding life all the richer for it.
Saturday, November 29, 2008
The Best Birthday Present Of All!
Wills was on good form today but in pain again. He declared that it had been a good day for him but a bad day for his tummy. He was chatty and getting close to his self. His liver enzymes are now improved, a great relief to me and the team. However, his stoma has completely stopped working and we had to stop his feed. Once again, we were down at x-ray. William insisted on taking all his lovely balloons with him, much to the amusement of everyone we passed en route. The surgeon came to see us when we got back and asked me to put the tube that goes into his jejenum, the bowel just below the somach, onto fre drainage. Immediately, right before our eyes. 250 mls of bile poured out. William's stoma is very swollen and the surgeon thinks the end of the bowel may have been punctured in the routine stoma biopsy that happens twice a week. Wills is off feed for the time being and we will wait and see what happens over night. If the stoma is still not working he will have a CT scan and may have to go back into theatre. This is a dissapointing set back but that is all it is. His bowel did work and it will again! It is sad for him that he may have to face another painful operation though.
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4 comments:
Yay for having your family all together on your birthday!!! Hope you had a fabulous day!
I'm glad that they figured out what the problem was with William's stoma, and I really really hope and pray that he won't need the operation and that his bowel will start working again by itself.
Hugs!
Becky xxx
Happy Birthday for yesterday Sarah, so glad to hear you were all together for the day.
Praying for William's bowel to start working, so he doesn't have to go back to theatre.
Thinking of you all.
xxx
how could you post such a rubbish pic of me on the internet for everyone to see:[
lol
missing u lots
Hopexx
Beauty is in the eye of the beholder,Hope. I think it's a lovely pic. Gma xxxx
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