You never know what life will throw at you! In 2004, my stable life with two healthy daughters was rocked to the core when I gave birth to William, a little boy with complex needs. Life was never the same again. We've come through living in hospitals, a small bowel transplant and coming to terms with Asperger's Syndrome and I'm finding life all the richer for it.
Sunday, December 28, 2008
Ellie adding her prayer to the tree in the Chapel
A quiet moment watching the Christmas Charlie and Lola
Hope is really growing up
Enjoying opening a Postpal's Elf Box together on Christmas Eve
William's Christmas dinner - his first bolus feed leaving him free from being attached to medical equipment for the first time in his life
Special presents for two very special sisters
Tasty, not quite like you have at home but no washing up!
Christmas day in the morning, not all that unlike the scene would be at home
Ellie enjoying Christmas dinner
William having fun with his cracker
Christmas dinner is served
William's room resembling a toyshop
I am sorry the pictures are a bit jumbled up in order but I'm sure you can see what a fantastic Christmas we had. Ellie and Hope both said how strange they found it that their best Christmas ever was one spent in hospital. We were all together having fun and that means the world to us all now. This year, our minds were re-focused on the real meaning of Christmas and we all said that Christmas will never be quite the same again.
The girls and I woke at 6.30, delighted to see that Father Christmas had been. We picked up the stockings and went over to William, who was already awake and watching CBEEBIES. I was amazed that he hadn't already got stuck into his stocking, and the huge pile of extra presents Father Christmas had delivered to the children in hospital for Christmas. The children opened their stockings together and the day progressed much as Christmas day usually does. We were amazed at people's generosity in their presents to the children. I was really touched by a wonderful bunch of flowers that I received just before Christmas. Thank-you SO much. They have really brightened up my room in the parent's accomodation hotel and made it so much more homely for the girls and I over Christmas.
Christmas dinner was different, being eaten out of polysterene, but it was tasty and there was no washing up. William had his own Christmas dinner - his first bolus feed which he tolerated really well. Paul arrived in the afternoon and we opened the family presents. We then played together with toys and games before the girls and I left Paul to put William to bed and went back to the room for some festive TV and more games. Paul soon joined us as Wills was more than ready for bed and we relaxed with a drink or two and some nibbles. Although we are all looking forward to a home Christmas next year - it will be the first we have all had together at home for five years, we all agreed that this year was one of the most magical Christmasses we have ever had.
Our donor and family were in our thoughts and prayers. The girls and I discussed this, away from William but one incredible moment showed just how deep he can be for his age. I have talked to him about how his 'new tummy' was a special gift, like and early Christmas present. I didn't say any more about where it came from. Half way through the day, he toddled over and sat on my knee for a cuddle and said "What was the best Christmas present I got that Father Christmas didn't bring?" "I don't know", I answered, expecting him to be fishing for his Thomas and the Great Discovery play set with the new 'Stanley' engine that he was hoping we had got him (which we had but he hadn't been given it yet). His reply was very different
"It was my new tummy!" It wasn't just his best present - it was the best present for all of us.