Update before a break

Quick update today as I am off for a night away from the hospital this evening with the lovely 'LB' and 'V' from Fetch.

William's stoma poured yesterday and this morning so he ended up back on IV fluids this morning. He will start on another drug today to try and slow it down. His blood sugars are settling but the diabetic team came to review him today and increased his insulin by a unit (while I was out buying him a baby doll to stop him playing with the rather mucky one he found in the corridor and adopted!).

William is bored and fed up as he is very well in himself. I have a room in the hotel from tonight though. My name had not been added on the list so it took a while to get. William sleeps till 8 at the moment and, with the nurses doing his morning meds, I am looking forward to enjoying the treat of sleeping at the hotel and having some 'me time' before we get home. I am hoping that will not be too much longer so we can all be together again. Mum and Dad have done a sterling job in taking care of the girls with their winter viruses and emotional ups and downs through the last few months but I do miss them and wish I was with them through all of this myself. You do miss so much of the siblings' years that can't be re-created when all has calmed down for the 'sick' child.