You never know what life will throw at you! In 2004, my stable life with two healthy daughters was rocked to the core when I gave birth to William, a little boy with complex needs. Life was never the same again. We've come through living in hospitals, a small bowel transplant and coming to terms with Asperger's Syndrome and I'm finding life all the richer for it.
Friday, July 11, 2008
Quick clinic report
We have just been to clinic. Poor Ellie had to come too as she has an inset day. I think she heard a bit too much and is somewhat subdued. William does need a relatively urgent operation to remove his gall bladder as he has 'obstructive jaundice' caused by his gall stones blocking the biliary tract. The good news is that that is why he has jaundice - in general, his liver is OK (ish - for someone on TPN!). Our consultant now has to contact Birmingham to see if they want to bring his transplant assessment forward before he has the operation or want the team here to go ahead. He may go to Kings as they had a specialist liver unit. William often takes a while to stabilise his stoma output after surgery so it could mess up the assessment. Oh well, we are set for another summer holiday in hospitel any which way... Must get Wills packed for CHASE now...
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1 comment:
Have a fab time this weekend - give Lee a big kiss from me, I narrowly missed one of his regular GOS visits recently and was very disappointed! Xan is very excited that Ellie is coming to Sibs day, hope the weather is nice for them all, they deserve it! xxxxSteph
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