On Boxing Day, I blogged how I amazing our first healthy Christmas has been and how I hoped those friends I have who are waiting for their transplants can experience the same next year. My Christmas wish was for them to get their call, not least Jess, the inspiration behind the savejess campaign. I saw Jess on Monday when myself and some of her other friends went into her room at Kings Hospital, London ahead of her on an emergency transfer to transform the room we all feared she would spend her last Christmas into a magical grotto. I have never seen anyone fight for their life so hard. Both Emily (the friend I was with) and I went away feeling we had seen her for the last time. We all hoped a little of the magic would be real enough for her to get the only Christmas present she wanted this year, a pair of new lungs and a chance to see in the New Year.
You never know what life will throw at you! In 2004, my stable life with two healthy daughters was rocked to the core when I gave birth to William, a little boy with complex needs. Life was never the same again. We've come through living in hospitals, a small bowel transplant and coming to terms with Asperger's Syndrome and I'm finding life all the richer for it.
Monday, December 28, 2009
Christmas Magic
On Boxing Day, I blogged how I amazing our first healthy Christmas has been and how I hoped those friends I have who are waiting for their transplants can experience the same next year. My Christmas wish was for them to get their call, not least Jess, the inspiration behind the savejess campaign. I saw Jess on Monday when myself and some of her other friends went into her room at Kings Hospital, London ahead of her on an emergency transfer to transform the room we all feared she would spend her last Christmas into a magical grotto. I have never seen anyone fight for their life so hard. Both Emily (the friend I was with) and I went away feeling we had seen her for the last time. We all hoped a little of the magic would be real enough for her to get the only Christmas present she wanted this year, a pair of new lungs and a chance to see in the New Year.
Saturday, December 26, 2009
The Christmas That's Been 5 Years Coming
Waking up together to see what Santa's bought - for the first time in 5 years
For the first time in 5 years, we've spent Christmas at home together with the family. No hospitals, no painful treatments, no drips, no anguish that this could be the last Christmas fro William. It has been wonderful. William was as excited as any 5 year old and had the energy to be able to feel and express it. We spent Christmas in Stoke-on-Trent with Mum and Dad, the first time ever they've been able to see William over Christmas. I could say more, but the pictures say it all.
Of course, my thoughts and prayers have been with our donor family, with those I know who died waiting for their gift of life this year, for friends we have lost over the last 5 years and for those who, like us in previous years, spent yesterday trying their best to enjoy the day, knowing that this could be the last their loved ones will see if their gift of life doesn't come soon. My Christmas wish is that those I know who are waiting for their transplants get that call very soon so that they can spend a Christmas full of happiness and peace next year like we have this year.
Sunday, December 06, 2009
I can't believe I was there! Downing Tweet Christmas Party Pt 2
Saturday, December 05, 2009
Million Mums - Downing Tweet Christmas Party pt 1
I am having a wonderful, although very emotional time at the moment. It has been many years since I have felt so Christmassy. This year, I am able to relax and enjoy advent and the Christmas preparations, the Christmas concerts and sitting round the table with glitter and glue because, for the for the first time in 5 years, William, Hope, Ellie and I are home together and, barring any sudden emergencies, we will be for the foreseeable future.