You never know what life will throw at you! In 2004, my stable life with two healthy daughters was rocked to the core when I gave birth to William, a little boy with complex needs. Life was never the same again. We've come through living in hospitals, a small bowel transplant and coming to terms with Asperger's Syndrome and I'm finding life all the richer for it.
Thursday, March 01, 2007
Further delays...
Well, we should have been going home today but, unfortunately, William's new TPN prescription has posed problems in gaining stability in the bag. Each bag of TPN contains all the nutrition, vitamins, minerals and fluid the recipient needs in the day and is a unique presscription to the individual, based on blood test results. With such a complicated mix of chemicals, there can be problems in stability and each bag needs to be stable for 2 weeks to enable storage in the fridge. So, William remains on fluids alongside his TPN, although we are expecting the new prescription to arrive today. They then want to see if his electrolytes balance OK on the new stuff so it will be next week before we are home. We are due in overnight for an MRI scan and to train with new home TPN pumps on Thursday anyway so everyone has agreed it is silly to go home for a couple of days and come back. Another week in hospital with the girls away in Stoke is looming...
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1 comment:
Hello mum
how r u
we r having fun at grandma and granddads and i am thrilled about my secondry school
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