tag:blogger.com,1999:blog-25884037.post3816082793222584909..comments2023-05-27T12:21:31.005+01:00Comments on A Tale of Two Tummies: A Fine LineSarah Milnehttp://www.blogger.com/profile/17518430862319036589noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-25884037.post-17911596837313362952008-10-05T22:27:00.000+01:002008-10-05T22:27:00.000+01:00I read your blog and follow your story. I persona...I read your blog and follow your story. I personally have a chronic illness and live in flats where everyone is unwell and i find i have to hide myself away as i can't handle the competiotion. I want to stay well the longest and out of hospital the longest and say this but i get pushed out of the community and my friends as i am having a 'well' week. It makes it tough to say how well i am doing and makes me more isolated, but i don't care, i am going to stand on the roof and shout 'i have been out of hospital a week and am doing well' yayAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-25884037.post-40148016134883071822008-10-05T15:11:00.000+01:002008-10-05T15:11:00.000+01:00It isn't just people in hospital, the "my child is...It isn't just people in hospital, the "my child is sickest" or "I am sickest" thing goes on in all sorts of medical communities on wards, in person and online.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-25884037.post-33694933931095005252008-10-05T00:34:00.000+01:002008-10-05T00:34:00.000+01:00Hi,Just read the last post and it did make complet...Hi,<BR/><BR/>Just read the last post and it did make complete sense. I can relate to the pecking order and like helen said it tends to be the newbie's who make the most fuss as i suppose the rest of us have been in the system so long it is the "norm" <BR/><BR/>I think this definetly happens more so in the pead's setting as you have the parents of the kids who are newly diagnosed causing the fuss (one of my son's gene's is so rare he is one in 200 million etc, and sadly oh my daughter is in again with double pneumonia, like it is a badge of honor) and the parent of the older kids who i suppose humor them as they are beyond caring about the why and how there child is ill and more focus on getting them better and about everyday life and getting things back to normal again, knowing the next admission is never too far away. The sad reality of life with cf and so many other conditions<BR/><BR/>I moved to the adult unit about a year ago and everyone seems more relaxed and the only competition i have came across so far is who can stay out the longest :PChickpeehttps://www.blogger.com/profile/02062908597289848122noreply@blogger.comtag:blogger.com,1999:blog-25884037.post-69676567129302801672008-10-04T23:34:00.000+01:002008-10-04T23:34:00.000+01:00Hi Suzie,I was posting at the same time as you! Th...Hi Suzie,<BR/>I was posting at the same time as you! Thanks for commenting. I don't feel like I am the only one that experiences things like this now - that is something of a relief. xxSarah Milnehttps://www.blogger.com/profile/17518430862319036589noreply@blogger.comtag:blogger.com,1999:blog-25884037.post-40401365100792553592008-10-04T23:32:00.000+01:002008-10-04T23:32:00.000+01:00Hi Helen,So great to hear from you :-) The wierd c...Hi Helen,<BR/>So great to hear from you :-) The wierd community is really among the gastro Mums at the moment. I think there was a lot more 'turn around' back in the day (she say's smoking a pipe ;-) ) There were tragedies, some children got better, two had their transplants so we weren't all living in here or in and out of here in this strange little bubble for so long. Some of us have kept in touch in 'the real world - or on Facebook' but we didn't have to coexist so long in here for so long. We supported each other, where as these days people seem to need to fight their corner more and I am not guilt free on this one but, having taken a step back to see it, will try not to do this anymore. The vacuum makes you feel the need to get frustrated and mad over things that, quite frankly, don't matter in the grand scheme of things!Sarah Milnehttps://www.blogger.com/profile/17518430862319036589noreply@blogger.comtag:blogger.com,1999:blog-25884037.post-34945486680970236542008-10-04T23:31:00.000+01:002008-10-04T23:31:00.000+01:00Hiya Sarah,I really enjoyed reading that entry ton...Hiya Sarah,<BR/><BR/>I really enjoyed reading that entry tonight because I identified with a lot of the things you said. I always steered clear of the 'lets talk about who is the most poorly' get togethers, not purposely though, I just always had other things to do that kept me busy and maintained a balance.<BR/><BR/>Thats a very short reply and I could go on and on, but I'd probably drift so I'll say nite.<BR/><BR/>Much love.<BR/>xxxsuziehttps://www.blogger.com/profile/06013622713057500194noreply@blogger.comtag:blogger.com,1999:blog-25884037.post-44105654117784244332008-10-04T23:24:00.000+01:002008-10-04T23:24:00.000+01:00So funny reading this! I was talking about this la...So funny reading this! I was talking about this last night with my friend..<BR/><BR/>But not as part of the 'my child is the sickliest' syndrome but the 'my grief is worst than yours' syndrome....<BR/><BR/>I was scanning some groups a friend of mine had joined regarding losing people, mainly children....it was horrible, people clinging onto the fact that they'd uploaded a picture onto facebook, thinking it'd help others when really....they were all screaming 'ME ME ME'.....!<BR/><BR/>Back to your original point.....the only people that suffer from the 'My child is the sickest' syndrome are those who's child is only 'in'(slang for addmitted to hospital, a word normally only used by those who have experience lengthy bouts of hospital stays!!) for a few nights. Its like their world has come to an end....they're missing eastenders, unable to juggle all 'normal' duties as a parent/wife with the joys of a hospital stay....so in order to get people to truely understand how horrendous this ordeal is, they like to brag about how little 'Olivia' is so ill, how the nurses have practically told them she is the sickest child they've seen in their careers, how she needs one to one care for the duration of her stay......<BR/><BR/>AGGGHHHHHHH<BR/><BR/>I feel your pain Sarah!!!Anonymousnoreply@blogger.com